Friday All Day - Golf Outing - Brachial Plexus Injuries Fundraiser
Friday Night Parent Workshop - September 22
Saturday All Day Hawaiian Luau - September 23
Saturday & Sunday All Day - TheraTogs Private Togging Appointments - September 23-24
Monday All Day - Therapist TheraTogs Course - September 25

We made a huge choice this year to change the venue of our annual family event so that the funding that we usually spend on the venue would be redirected to something more pertinent for the long-term well-being of the children - a full weekend of TheraTogs information, assessments and even training for therapists.

We've returned to our "roots" of having the outdoor picnic in the park. The event is earlier in the year when the weather is usually "just right" and hopefully we won't have to move to our rainy day indoor alternative venue (to be listed closer to the event date). Also, (like we used to do in the past) you will receive your appointment time for your meeting with Dr. Nath and your event bracelet when you arrive at the event. Since you'll have already registered and paid for the event, all you'll need to do that morning is sign your name on the clipboard for your appointment time and get your bracelets.

In addition to the regular BPI clinic with Dr. Nath and a panel of therapists, we have a very special guest who will join us: Beverly Cusick PT, MS, COS (creator of TheraTogs). TheraTogs is an amazing product that helps the "whole child". Ms Cusick created a special nighttime positioning "Tog" for kids to sleep in. And she has chosen the pieces from her regular "Tog" set that will most benefit the child with BPI - thus creating a special "BPI TheraTog Kit". Read more about it on their website: www.TheraTogs.com.

"In complex shoulder deformities present in obstetric brachial plexus injuries (OBPI), bony changes are prominent. Correction often requires surgical management, and long term prevention of recurrence is an ongoing concern. Rigid splinting has its place in early post- surgical rehabilitation, but availability of softer, dynamic devices has been an important goal in this area. Recently, in conjunction with the TheraTogs company, we have developed a specifically designed post- triangle tilt garment that will dynamically assist in training and maintaining functional and anatomic positions of the entire shoulder, arm, hand and body. We believe that this is a breakthrough in materials design that will improve already excellent outcomes in children with OBPI."

- Dr. Rahul Nath, Founder & Director of Texas Nerve & Paralysis Institute

The Brachial Plexus Injuries is sponsoring Ms. Cusick's visit to PA so that she can share her insight and research with all of us, help us by offering her expert assessment and "togging" ability for the children, and teach our therapists what they will need to know to support our children.

There are three specific areas that Ms. Cusick will be involved in over the 4-days she will be here:

(1) Informative Parent Workshop on Friday night - Ms. Cusick will explain and show the parents what the TheraTogs garment is, what it's purpose is and why it works so well.

(2) Private TheraTogging Appointments on Saturday and Sunday. Ms. Cusick will be available to assess your child and create a personalized TheraTog garment for your child. We have a deadline on these appointments - August 15th - and there are only 8-10 slots available. When you register for this event and you checkmark that you want your child to be assessed and "tog'd" by Ms. Cusick, you will be contacted directly by the folks at Gaitways, Inc. at which time they will ask you for specific measurements of your or your child. You will be asked to pay a deposit on the TheraTogs kit and therapist time and the balance will be due on the day of your appointment. They accept check, cash or credit cards. The deadline of August 15 means that the deposit for the kit must be made by then - thus guaranteeing your appointment slot. This deposit will be non-refundable. (More specific information with before & after pictures, and a copy of the follow-up report, coming to this page soon!)

(3) A Course For Therapists on applying TheraTogs on children with BPI. Ms. Cusick will be leading a full-day course for therapists. Tell your therapist about this and the therapy organization. This is a wonderful opportunity for your therapist to get trained by the BEST! Who better to train than the inventor herself! Spread the word on this one! Registration is done on the regular registration page in this event section.

Here's the schedule for the four-day event:

FRIDAY - ALL DAY

BRACHIAL PLEXUS PALSY Brachialplexuspalsyfoundation.org GOLF OUTING FUNDRAISER
Gilbertsville, PA
This is the big annual fundraising event that the Cirinos organize. Don Tolefson (famous local sportscaster) and Dr. Nath will be special guest speakers at the outing at dinner.

FRIDAY - NIGHT

INFORMATIVE PARENT WORKSHOP with Beverly Cusick PT, MS, COS
Learn all about TheraTogs (www.theratogs.com) and how this orthotic garment may help you or your child. Children ages 2-10 may participate in a fully supervised "pajama party" in the next room while parents are busy in the workshop.

Please take note that this workshop is specifically for parents. Therapists are invited to attend the therapist course on Monday.

NEW LOCATION:

St. Paul's U.C.C.
440 Bethlehem Pike
Fort Washington, PA 19031

Bethlehem Pike - near the intersection of Pennsylvania Avenue, pass Maritas Mexican Restaurant on the right,
pass Rich's Deli on right, and within 5 feet of the deli, take a sharp right and a second later, take a LEFT into the church parking lot. It is a dark stone old fashioned church.

SATURDAY - 9 TO 5

FAMILY FUN EVENT - HAWAIIAN LUAU THEME - AT CASTLE PARK IN NORTH WALES, PA

Event begins at 9 am (we do not have early access). We will be at a wonderful community park that has an amazing playground for children of all ages. We will also have professionally run group games throughout the day. There will be a BPI Clinic with Dr. Nath that includes a panel of therapists. Pre-registration and payment for Hawaiian Luau is required. Appointment slots will be given on a first come first served basis when you arrive on Saturday.

Sunny Day Location:
Pavilion & Castle Park
Upper Gwynedd Township
One Parkside Place
(off of Sumneytown Pike)
North Wales, PA

Rainy Day Location:
First Presbyterian Church
4 South Ridge Avenue
Ambler, PA 19002
www.fpcambler.org

Call (215) 643-5913 to find out what venue we will be at.
My voice mail will have the information starting on Friday.

 

9	Luau Event Begins Both Clinics Begin	Pavilion
9 - 10	Receive your Luau bracelet and appointment slot for the BPI clinic. Arts & Crafts	Pavilion
10	Welcome Circle with David	Pavilion Field
10:15	Playground	Castle Park
11	Hawaiian Family Bingo w/ prizes	Pavilion
12	Hawaiian Luau Feast with special character guest!	Pavilion
1:30	Hawaiian Field Games For All	Pavilion Field
3:30	Frozen Treats For All Then Back to the Playground	Pavilion Field & Castle Park
5	Event Ends - See You Next Year!	Pavilion

 

SATURDAY & SUNDAY - ALL DAY

THERATOG CLINIC WITH BEVERLY CUSICK, PT, MS, COS
There are only eight to ten appointments available.
Pre-registration and deposit due by September 15. Balance due on the the day of your appointment. Credit cards accepted. No walk-ins please - Ms. Cusick only brings with her the exact amount of (and specifically sized) TheraTog garments for the appointments that are booked.

Location For Saturday:
Pavilion & Castle Park
Upper Gwynedd Township
One Park Place
(off of Sumneytown Pike)
North Wales, PA

Rainy Day Location:
First Presbyterian Church
4 South Ridge Avenue
Ambler, PA 19002
www.fpcambler.org

Call (215) 643-5913 to find out what venue we will be at.
voice mail will have the information starting on Friday.

Location for Sunday:
Those who register will be given the details for Sunday in a confirmation email.
If you are registered for Sunday and have not received this email - call Francine @ (215) 643-5913.

 

MONDAY - ALL DAY

COURSE FOR THERAPISTS
Learn how to use TheraTogs for the individual with BPI.
Beverly Cusick, PT, MS, COS (creator of TheraTogs) will present this course for Physical & Occupational Therapists. Register below. As of Thursday, September 21, there is still room at this course! Register now. Late registrants will get their course materials in the mail after the course.

Location:
Little Wonders Child Growth & Development Center
Hillcrest Plaza Shopping Center
100 West Germantown Pike
East Norriton, PA 19401

 

CLICK HERE TO CONTINUE TO THE ONLINE REGISTRATION PAGE

CLICK HERE FOR THE FINAL UPDATE ON THE LOGISTICS & DIRECTIONS PAGE